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Lecturer(s)
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Šaňáková Šárka, Mgr. Ph.D.
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Kašparová Petra, Mgr. Ph.D.
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Course content
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The course introduces students to the care of children and their families with life-threatening and life-limiting illness, including perinatal palliative care, options for follow-up health and social services in the Czech Republic, end-of-life care plan, assessment and management of symptoms, communication with family and ill child not only about death and dying, coping with loss and grief.
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Learning activities and teaching methods
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Lecture, Monologic Lecture(Interpretation, Training), Dialogic Lecture (Discussion, Dialog, Brainstorming), Observation, Demonstration, Projection (static, dynamic), Activating (Simulations, Games, Dramatization)
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Learning outcomes
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This course introduces students to basic information about children's palliative care issues including perinatal palliative care, communication with the family and child, symptom management, grief management and bereavement.
Communication with the child and family members in palliative care; assessment and management of pain and other symptoms; working with grief, bereavement and spirituality; prevention of burnout syndrome.
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Prerequisites
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unspecified
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Assessment methods and criteria
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Student performance, Analysis of linguistic, Dialog, Systematic Observation of Student
At least 70% attendance in attendance and active participation in the exercises.
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Recommended literature
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Amery, J., Staníčková, Z., Hrdličková, L., & Amery, J. (2023). Opravdu praktický průvodce dětskou paliativní péčí: pro lékaře a zdravotní sestry (2. rozšířené vydání). Cesta domů.
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Bužgová, R., Sikorová, L. (2019). Dětská paliativní péče. Praha.
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Davies, B., Steele, R., & Baird, J. (2022). Pediatric palliative care: a model for exemplary practice. Routledge, Taylor & Francis Group.
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Hain, R., & Goldman, A. (2021). Oxford textbook of palliative care for children (Third edition). Oxford University Press.
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Scheinostová, A. (2023). Sebevražda.. a jak dál?!: rozhovory, články, vzpomínky, kontakty. Cesta domů.
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Špatenková, N., Friedlová, M. (2024). Zármutek dětí a dospívajících. Praha: Grada.
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Wolfe, J., Hinds, P. S., & Sourkes, B. M. (2022). Interdisciplinary pediatric palliative care (Second edition). Oxford University Press.
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