Family, its concept and significance from a sociological, psychological, educational point of view, etc. Socio-cultural specifics of the Czech environment in relation to families of persons with special needs, including the historical context. Characteristic topics related to the experiences of parents / carers of people with special needs and the impact of special needs on the family - e.g. caregiving burden and the issue of multiple roles, economic burden, consequences for the physical and mental health of parents / carers, relational and personal benefits, the process of coping with disability, coping and resilience in families of persons with special needs, etc. Siblings of persons with special needs - lived experiences of siblings, effects of special needs of siblings on adaptation and functioning (e.g. influence of internalizing and externalizing factors), health and quality of life, approaches for psychosocial support of siblings and their effectiveness. Formal and informal support for families of persons with special needs - concept of family-centered care, barriers in the use of professional services, examples of interventions, typical professional services for families. A combination of formal and informal support, its possibilities and pitfalls. An overview of public support available at different stages of a caring family's life. Social factors in relation to a family with a person with special needs - attitudes of the environment, stereotypes in the approach to people with special needs, barriers and facilitators in the social environment with an emphasis on the domestic socio-cultural context. The social level of the position of the caring family in the context of the social, economic, political and normative development of the Czech Republic. Specific and caring family-oriented systems of public support for caring families and their elements. Health, social and educational services, their intersection, possibilities and limits of cooperation of systemic support teams. List of recommended literature and materials: DANTAS K. O., NEVES R. D. F., RIBEIRO K. S. Q. S., BRITO G. E. G., BATISTA M. D. C. (2019). Repercussions on the family from the birth and care of children with multiple disabilities: a qualitative meta-synthesis. Cad Saude Publica. Jul 4;35(6): e00157918. English, Portuguese. doi: 10.1590/0102-311X00157918. PMID: 31291429. DEAVIN A, GREASLEY P, DIXON C. (2018). Children's Perspectives on Living With a Sibling With a Chronic Illness. Pediatrics. Aug;142(2): e20174151. doi: 10.1542/peds.2017-4151. PMID: 30049891. DUGGLEY, W., J. TYCHOLIZ, L., HOLTSLANDER et al. (2017). A metasynthesis study of family caregivers? transition experiences caring for community-dwelling persons with advanced cancer at the end of life. Palliative Medicine [online]. 31(7), 602?616. ISSN 0269-2163, 1477-030X. Dostupné z: doi:10.1177/0269216316673548 ELANGKOVAN, I. T., S. SHOREY, (2020). Experiences and Needs of Parents Caring for Children with Cerebral Palsy: A Systematic Review. Journal of Developmental & Behavioral Pediatrics [online]. 41(9), 730?739. ISSN 0196-206X. Dostupné z: doi:10.1097/DBP.0000000000000880 EVANS, J. M., DARRAH, J., GALADOS, N. L. (2011). The Parenting Journey of Mothers of Young Adults with Multiple Impairment. In Journal of Developmental and Physical Disabilities. 2011; 23:183?193. ISSN 1573-3580. FISHER, V., L. FRASER, J. TAYLOR. (2021). Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis. BMJ Supportive & Palliative Care [online]. bmjspcare-2021-003019. ISSN 2045-435X, 2045-4368. Dostupné z: doi:10.1136/bmjspcare-2021-003019 FITZNEROVÁ, I. (2010). Máme dítě s handicapem. Praha, Portál. ISBN 978-80-7367-663.
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